The Cupcake Revolution

Three years have passed since I published “Mothering Cal” in Slate, just before Mother’s Day 2013. It had been 11 months since my daughter Cal was diagnosed with leukodystrophy, a fatal degenerative brain disease. Cal is named after the muse Calliope, the goddess of music whose divine power is to inspire beauty in the world. The last time Cal would sing for me would be in the hospital, two days before a brain MRI revealed Cal had metachromatic leukodystrophy, or MLD. It is one of 50...

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